腫瘤登記資料的收集分為被動收集和主動收集兩種方法。被動是由各醫療機構定期報送腫瘤登記卡片到腫瘤登記處，或從死因監測部門獲取腫瘤患者死亡信息。主動是登記員到各醫療單位、醫療保險機構查閱腫瘤新病例的診療病史，摘錄腫瘤病歷信息，或主動隨訪獲取患者的生存信息。

腫瘤登記地區從相關部門收集轄區內腫瘤新發病例、死亡病例、生存信息和相關人口資料。病例資料的收集渠道包括登記地區各級醫療機構、醫療保險數據庫、死因監測數據庫、新型農村合作醫療數據庫等。人口資料的來源包括人口普查資料和公安、統計部門有關資料等。

腫瘤登記地區負責腫瘤病例的建卡和分類編碼，并以身份證號作為標識。通過核對死因監測數據庫，對遺漏病例進行補充建卡，對重復病例進行剔除。

隨訪工作的開展采用被動隨訪和主動隨訪相結合的方式進行。腫瘤登記處首先將腫瘤發病庫與全死因登記庫進行被動匹配。未匹配上者通過定期訪視、電話、書信、電子郵件等方式，并通過社區居委會、基層醫療衛生機構開展主動隨訪，獲取病例的生存情況（圖2-1）。

2　Methods of data collection

Case reporting methods are classified as active or passive.Cancer registries may passively receive the cancer registration cards from health-related institutions or vital statistics bureaus.Meanwhile，Cancer registry personnel may actively retrieve the cancer data from health-related institutions，insurance bureaus and public security bureaus.Cancer registrars may actively follow up the cancer patients for their vital status.

2.1　Data collecting channels

Cancer registries should collect cancer statistics including cancer incidence，cancer death，cancer survival and population data from all kinds of channels.The cancer registries may collect cancer statistics from clinics，hospitals，health insurance databases，death surveillance database，and cooperative health insurance database in rural areas.

2.2　Cancer case certification

The cancer registries are responsible for making cancer case report forms，using identification card number as personal identification code.The cancer death records should also be matched with incidence database.The missing incidence cases should be supplemented，and the duplicated cases should be deleted.

2.3　Follow-up practice

Both passive follow-up and active follow-up are used to collect the survival information of cancer cases.Staff of local registries linked the cancer records and death records based on identifiable information.Patients who were not linked to the death surveillance system are then further followed up through direct contact with them or their family members through home visit，telephone，mails and emails（Figure 2-1）.